Submit your questions to the panelists via Twitter @PetrieFlom.
Please join the Petrie-Flom Center for a live webinar to address what health care reform may look like under the new administration. Expert panelists will address the future of the Affordable Care Act under a “repeal and replace” strategy, alternative approaches to insurance coverage and access to care, the problem of high drug prices, innovation policy, support for scientific research, and other topics. The panel will discuss opportunities and obstacles relevant to President-elect Trump’s proposals, as well as hopes and concerns for health policy over the next four years. Webinar participants will have the opportunity to submit questions to the panelists for discussion.
Joseph R. Antos, Wilson H. Taylor Scholar in Health Care and Retirement Policy, American Enterprise Institute
Lanhee J. Chen, David and Diane Steffy Research Fellow, Hoover Institution; Director of Domestic Policy Studies and Lecturer, Public Policy Program; affiliate, Freeman Spogli Institute for International Studies, Stanford University
Almost any test can return incidental results. An incidental result is something demonstrated by the test but not an answer to the test’s original question. Trying on a new pair of trousers, for example, can tell you whether or not they fit. It can also return the incidental result that the holiday feasting hadn’t been as kind to your waistline as you had hoped. Incidental results in genetic testing can be even more alarming. Whether done for clinical or research purposes, genetic tests can reveal a range of mutations, markers and predispositions far beyond the range being tested for. As technology advances, it expands the breadth of possible results.
Incidental results can often impart life changing information. Many can be a cause for dramatic but potentially life saving medical intervention: the presence of BRCA1 and BRCA2 variants that indicate an increased risk of breast cancer, for example.Where incidental results suggest that a patient might have an increased risk of developing a condition in the distant future, that information might allow them to act immediately to mitigate that risk. Genetic testing might also reveal inherited or inheritable mutations that could be crucial information for a patient’s entire family. Even outside the realm of disease, a genetic test might reveal something that could have huge psychological or social ramifications for a patient: for example, a test might reveal true paternity. However, the potentially life altering nature of some of these findings, in contexts where they are not being looked for or even expected, has led to questions about whether they should be revealed to the test subject at all.