By Nicolas Terry and Frank Pasquale
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This week we welcome Lydia Nicholas, a Senior Researcher in Nesta’s Collective Intelligence team, who is exploring new forms of knowledge production and problem solving that are emerging from the collaboration of networked publics, institutions and organizations. We focused our discussion on the use and abuse of health data. Lydia is based in the UK, where some recent incidents involving data (including the care.data controversy and Deep Mind’s analysis of records to develop AI diagnostic capacities) have focused discussion on data collection, analysis, and use.Lydia’s work looks at how minds, systems and technologies come together to perform better at cognitive challenges with particular focus on health and patient organisations. Before joining Nesta Lydia worked as a researcher across technology sectors, with particular focus on medical and biological information. She has an MSc in Digital Anthropology and has researched public understanding of Big Data and data collection practices. This expertise enriched our discussion of the quantified self and emerging practices of the “quantified self,” as well as the “metric power” accumulated by those with access to information. Be sure to follow Lydia on Twitter @lydnicholas for more news and views on data ethics and policy.
The Week in Health Law Podcast from Frank Pasquale and Nicolas Terry is a commuting-length discussion about some of the more thorny issues in Health Law & Policy. Subscribe at iTunes, listen at Stitcher Radio, Tunein and Podbean, or search for The Week in Health Law in your favorite podcast app. Show notes and more are at TWIHL.com. If you have comments, an idea for a show or a topic to discuss you can find us on twitter @nicolasterry @FrankPasquale @WeekInHealthLaw