Internet & Democracy Blog

In the first panel at A2K3 on the history, impact, and future of the global A2K movement, Tim Hubbard, a genetics researcher, laments that scientists tend to carry out their work in a closed way and thus very little data is released. In fact he claims that biologists used to deliberately mess up images so that they could not be reproduced! But apparently journals are more demanding now and this problem has largely been corrected (for example Nature’s 2006 standards on image fraud). He says that openness in science needs to happen before publication, the traditional time when scientists release their work. But this is a tough problem. Data must be released in such a way that others can understand and use it. This parallels the argument made in the opening remarks about the value of net neutrality as preserving an innovation platform: in order for data to be used it must be open in the sense that it permits further innovation. He says we now have Open Genome Data but privacy issues are pertinent: even summaries of the data can be backsolved to identify individuals. He asks for better encryption algorithms to protect privacy. In the meantime he proposes two other solutions. We could just stop worrying about the privacy of our genetic data, just like we don’t hide our race or gender. Failing that, he wants to mine the UK’s National Health Service’s patient records through an “honest broker” which is in intermediary that runs programs and scripts on the data that researchers submit. The data are hidden from the researcher and only accessed through the intermediary. Another problem this solves is the enormity of the released data that can prevent interested people from moving the data or analyzing it. This has broad implications as Hubbard points out – the government could access their CCTV video recording to find drivers who’ve let their insurance lapse, but not track other possibly privacy violating aspects of drivers’ visible presence on the road. Hubbard is touching on what might be the most important part of the Access to Knowledge movement – how to make the access meaningful without destroying incentives to be open.

Crossposted on Victoria Stodden

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