As with earlier VRM workshops, it’s a free unconference, organized on the open space model. Participants choose the topics, move those topics forward in open discussion, and share progress with the whole group at the end of each day.
For those of you not familiar with VRM, the letters stand for Vendor Relationship Management, and it’s about the tools that developers and friends are creating to provide individuals with tools of independence form organizations that wish to control them — and better means for engaging with those organizations. In other words, it’s about blowing up silos and walled gardens, and creating a better system: one in which individuals are the collection centers for their own data, and the ones controlling what gets done with that data.
There are many projects and topics already moving forward that should get a boost from participation at the workshop. Here in the UK this week I met with folks involved in MyDex and The Mine! Project — the latter in a VRM Hub meeting last night overlooking the Thames and Blackfriars Bridge.
In Boston I’m looking forward to a lot of discussion on a topic we might call HCRM, or Health Care Relationship Management. The Boston area is a hotbed of forward thinking about patients controlling their own health care data, and reforming the health care from the individual side of the relationshp with the systems in control of it. Here is an excerpt from the link above:
Among the biggest topics in HCRM in recent years has been PHR, for Personal Health Records. Search for that, with quotes, and you get over half a million results. Leave off the quotes and you get fifty-five million results. The more specific (and less confusing, with Physicians for Human Rights) EHR, for Electronic Health Records, gets nearly five million results.
This is a huge topic, of a degree of importance that verges on the absolute. It’s also perhaps the most sisyphean of VRM categories. I find that daunting, but there are many professionals in health care and related fields who have been doing a great job pushing big rocks long distances. These people are heroes, even if they don’t know or acknowledge that. Here are some links to get started:
- John Halamka, also @jhalamka
- Enoch Choi, also @enochchoi
- Brian Ahier, also @ahier
- ePatientDave, also @epatientdave, who also blogs at ePatients.net, where I just found this not-too-oldie, but goodie
- ePatients white paper
- David Harlow, also @davidharlow
- Mark Scrimshire, also @ekivemark
- Greg Masters, also @2healthguru
I could (and should) write more, but I’m in London waiting for a plane, lucky to have any connectivity at all. (Which, if I’d had enough at my hotel this week, this would have been posted much earlier.)
In the next few days I’ll write about other topics I’m hoping to see covered at the workshop.